Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito.
Thursday, March 31, 2011
New Day....But Nothing Really New
After yesterday, I feared I would awaken to a different world today. Not true. Garrett still got up and climbed into my bed and told me he loves me. I changed his diaper and got him dressed as he jabbered about the bus coming to get him for school and how he wanted to wear "school pants," which are any khaki pants. That's leftovers from having to wear a uniform to school in Louisiana. We ate. He took his first 4 doses of his daily 13 meds and supplements. The bus came. The cows moo-ed for me to feed them. The sun rose. I breathed. Therefore God is with me, with us all. As new sign I bought to go in my kitchen says, "Keep calm and carry on!" Clara-Leigh
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