Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito.
No Mito Allowed!!! I love pictures, especially ones I take!! Of people I love!! And of things I like!!!
The theme of this entry is NO MITO ALLOWED!!! And I mean just that.
These are photos of our beautiful, perfect Garrett during moments Mito cannot taint, shadow, or ruin. It's the raw footage of the fun stuff. Playing outdoors in the water, goofing off when he should be napping, and enjoying the affection and huge heart of his big sisters Addie and Ainslee. I try to hard to photograph these times because they are, of course, the way I wish things could always be. No frustrating behavior, lack of communication, frustration, tiredness, constipation and tummy trouble, worries about the future or how we will survive the day!! While Mito affects our family and occupies our thoughts many times daily, there are just some things it cannot touch!! So today, as we are in the middle of Mitochondrial Disease Awareness Week, if you or your loved one(s) are affected by Mito, then try to focus on the things, even if they are the tiniest moments, that take your breath away about your child. What can Mito not take? Can we just for a moment give Mito the finger and smile, celebrate, and laugh in its face. We all need to!! Godspeed,