Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito.
Today I took Addie, Ainslee and Garrett to ski before we picked Grouchy up at the airport from his two week work trip. I was not sure if I could handle Garrett on skis by myself, but I prayed about it and it worked!! I even got him to cooperate with his backpack with the handles so he could ski ahead of me. He did soooooo much better today than last time because I put the Edgie Wedgies on his skis.....straps the hold the front ski tips together. This gave him enough stability to learn to stop and even start to turn some!! AND we rode the lift on the bunny slope SIX TIMES and he was a real champ!! Yes, it's a workout for me, but that goes along with my theory that my live is an athletic event!! Here's a clip of Garrett skiing and of him clocking me with a few snowballs!!!