Our son Garrett has a mitochondrial dna depletion syndrome, exact gene(s) unidentified. Our oldest child, Addie, probably has it as well. That leaves our gorgeous ball of energy, the middle child, Ainslee, appearing to be untouched by this disease. Follow along and peep through the window at our victories, struggles and lessons learned living with mito.
Tuesday, November 30, 2010
Monday, November 29, 2010
Just Photos!
Saturday, November 27, 2010
Video of Garrett Sledding in a BOX!
Grouchy had been pulling Addie and Ainslee around behind the 4-wheeler on two very small, flexible sleds in the snow this morning, and Garrett wanted to try it, but it was not a very stable set up for him. So after disappearing into our barn for a few minutes, Garrett and Grouchy emerge with this contraption.....a rope tied to a big plastic storage bog with Garrett INSIDE the box!!! It was so cute and safe for Garrett. He was all grins!! Hope you can catch a little of the fun in this 30 second clip!!
Godspeed,
CL
Friday, November 26, 2010
Thankfully, Prayerfully
So in reflection of Thanksgiving, I wish to offer thanks not just for the amazing goodness bestowed upon the details of my earthly existence, but thanks for all of the stuff God has to wade through when my prayers arrive.
Most of all, I am thankful that I know Jesus Christ, that He is so powerful and all-knowing, and that I am just in the tiniest beginning stages of eternal life. THAT'S HEAVY!!!
Godspeed,
CL
Wednesday, November 24, 2010
Lessons Learned....so far...
In experiencing this phenomenon for the first time in quite some years (since being in Japan for two weeks during a record setting cold spell and snowfall in 1996, to be exact), I have learned a few valuable things:
1. If you send a freshly-showered female child with long, wet hair out to ride her four-wheeler when it is 4 degrees, the hair freezes into dreadlocks.
2. Not everybody likes marshmallows in their hot chocolate. (HOW WRONG IS THAT!?!?!)
3. Horses are much, much, much more frisky than usual in the very cold and windy.
4. Electric blankets are proof God loves me and wants me to be happy.
5. When you see something black and shiny on the ground outside your car after you park at the doctor's office, DO NOT step confidently onto it as it will cause you to BUST YOUR _____ in the BIGGEST WAY.
6. When your husband offers to feed the horses and it is 6 degrees outside, swallow your pride and take him up on it. Then, later, make it up top him!
7. And last, at least for this installment, it is very, very, very hard to pick a wedgie through three layers of clothes....I'm just sayin'!
Happy Thanksgiving and Godspeed,
CL
Sunday, November 21, 2010
I Wanna Ride My Twactuh da Snow, Mommy!
So far, he does pretty well in the cold IF we catch him on the way out in time to get a hat and gloves and shoes other than his Crocs on!! Without them, he plays for about 15 minutes, then has a tantrum as his hands start to hurt and freeze. SO we have to get better at protecting him. All he thinks about is being OUTSIDE!!!!!! Addie absolutely loves the cold, and she has the clothes and gear for it, so that's a huge help! Ainslee has a fun time making snow angels...on her STOMACH...she has to do things differently. It's just her style.
I saw some good lighting and a great backdrop of Addie's horse, Lucy, and then Remington wagged his way into this photo. It was a cute shot, but check out the next one, my new favorite.....
Ainslee took her turn making pancakes but then got tired of the task and left me ALONE....not always a good idea, but then I decided to write her name in pancake. She loved it!
Friday, November 19, 2010
Finally, the End of the Rainbow!!!
There's a JOHN DEERE TRACTOR at the end of the rainbow!! I have to say that's even better than a pot of gold!!
Godspeed,
Thursday, November 18, 2010
My Kids Went NUTS!
Know how you see kids doing things and you know it's your parental responsibility to throttle them back, get them into check, get things under control, etc.? Well, this was one of those times, but instead of restoring order, I just started shooting them.......with my camera. So here's the wildlife emerging one last time in Idaho before the hard winter hits us:
Sunday, November 14, 2010
Toilet Seat Covers....gggrrrrrrrr....
Wow, now I think of it, there are two things I want to talk about, now three, but I will stick to #1 and blog separately about #2 and #3 at another time. So here's the thing that has caused me such trauma that I have to share my agony with all of you:
TOILET SEAT COVERS..........those very, very, very thin paper thingies in holders above toilets to "help us keep save and clean." Seriously?? First, how many of you have ever pulled one of those thingies out of the holder without it tearing into at least 5 pieces and rendering useless? Second, how many of you have ever been able to tear the center of it correctly so you can place it on the john without tearing it even more? Third, can anything that thin and fragile REALLY protect us from ANYTHING???? I'll take 10, thanks.
I enter the bathroom ready to do the thing my mom taught me in my childhood. I take a hand full of toilet paper and wipe the seat. Next I take two long pieces of toilet paper and fold each in half, then use them for each side of the seat. There, dry, somewhat clean, and now protected!! But these paper thingies, really!?!?
Wait, I just figured it out. I think they are used to slow the flow of people through the bathroom stalls. THAT'S IT!!!! With the population of the USA booming like it is, I betcha most sewer systems cannot deal with the huge volume of, well, you know. SO they plant these paper thingies as something to help us, but in fact, they are placed there to slow us down. If you have to try two or three of them to get one suitable for use, then it slows turnover of stalls, thus easing up things on the septic systems! Am I genius or what?? Don't answer that.
So there is one of my many random thoughts for the day. I think I will stick with the method my mom taught me once I was tall enough: Hover Method. But then there's a glitch with that now, and that's the flushing under me when I am not done, and that SERIOUSLY grosses me out, but that is dealing with the topic #2 I want to blog on later!!!
Godspeed and yes, the kids are doing great in spite of my insanity!!!
CL
Friday, November 12, 2010
Thursday, November 11, 2010
A Dream Come True
WOW!!! Garrett has reached all sorts of milestones I wasn't sure he would meet, but this is one I never ever assumed I would see! I have led Garrett around on a horse...me on the ground. He has ridden Lucy (the one he is on in the photo) in our little arena "alone" with me within arms' reach, but today I ponied him off of Ernie. So as you see in the picture, I rode Ernie and he rode Lucy, and I had a lead rope attached to Lucy while we rode. This is huge because it means we can ride longer, maybe even on some trails someday. Even cooler is that he completely remembered the things I taught him like how to stop, turn, back up. So we would be riding along and then suddenly Lucy would pull on the rope and I would look back to see Garrett was turning or stopping Lucy. How cool!!! We rode from our house across our big alfalfa field to Farmer Bob's, which is about 1/5 mile, then around the field some before returning home. We jogged the horses a little twice, but Garrett looked a bit to wobbly to keep that up, so we did lots of walking. It might have been a ten minute ride total, but I was on top of the world, and so was Garrett. Garrett got a huge laugh when Lucy would make a snorting noise as we rode. This was a memory I was surprised to get to make. Ahhh, how sweet!!!
On a sad note, my mother's mom, Clara Burrett, died today, in her home surrounded by her three children, one day before her 96th birthday. "Buddy," as will call her, will always be remembered by me for the love and interest she showed all of her grandchildren, her beautiful artwork of needlepoint and watercolor that we have in our homes, and her deep love of animals. She always had at least two rescued dogs worshipping her every move. I had the wonderful experience of enjoying time with my grandparents at their home on a lake in north Alabama. We would swim, fish, enjoy meals together, celebrating years of Christmasses together. Our family will miss Buddy terribly, but we know we will be reunited in Heaven. Tonight she is free of suffering and pain, finally reunited with her husband, "Pappy," and surrounded by all of her faithful dogs!!!
Wednesday, November 10, 2010
Wow, the views!
I have affectionately claimed our neighbor's tree as MY YELLOW TREE!! Soon it will be my brown tree, and a few weeks ago it was just another green tree. But the weather is changing, the days getting shorter, and among the green wheat and the brown of the desert mountains, my yellow tree is spectacular. Enjoy it with me:
And along the same mountain range, just looking a little farther west, these areas have even more white on them!! Pretty!!! I love the contrast of winter and summer, browns, greens and now whites!
And I had to include this kitty, Diamond, Ainslee's cat because it's cute AND that's MY YELLOW TREE you can see in the distance!!!!
We enjoyed both of the girls rock climbing at the YMCA today. They were VERY proud to have Grouchy there to watch and cheer them on. Addie climbed for over an hour and is gaining so much strength!! I am so thrilled to report this!
Tuesday, November 9, 2010
.....Shake Your BOOTY!!
So the last night while my parents were visiting us, we went to this really, really yummy Mexican restaurant. My mom had given Garrett a Halloween card with a ghost on it, and when a button is pushed, the card plays the song Shake Your Booty. Garrett LOVES anything that produces sound of any sort, so he would play the card over and over and over. He had also learned the song quite well, even the first of the chorus that says AAHHHHH....
So we are finishing dinner and Garrett gets out of his chair, drums on the table with his hands (very, very common anywhere we are for him to drum on things) and starts to dance, then sing at the top of his lungs for our table and the other 8 occupied in the small restaurant, "Aaaahhhhhhhhhh, shake shake shake, shake shake shake, shake your BOOTY. Shake your Booty!!" Needless to say, this restaurant no longer needs to look to Mariachi bands for entertainment when Garrett is in the house!
Godspeed, and Shake YOUR Booty!!!
CL
Monday, November 8, 2010
Guests, Answered Prayer, and SHAKE YOUR BOOTY!!!
Here's beautiful Addie in the new leotard she bought with her OWN MONEY!! Go Addie!!!
My parents' last name is Horn. But that doesn't explain this confrontation between my dad, known as Pop, and Garrett. Garrett put his sippy cup on his head for his horns!
Aaahhhhh, another magical sunrise. And I just cropped this but did NOTHING to get this color. It was really that beautiful! I turned around after taking this to see the most vivid rainbow over our property, but I couldn't get the camera to see it as well!!! It was a reminder of all of God's promises to us!