Monday, January 30, 2012

Who's the Old Guy???


I may have blogged this cute story before, but it keeps coming back up in my mind to share, so here goes!

We are blessed to have a family nearby who have become very dear friends. In fact, of the parents and seven kiddos, I think every one of them has watched Garrett for us at one time or another.....the oldest son even on the weekend before his OWN WEDDING!!! They don't make many people like that anymore!! This happens to be Shelby's family!

During the summer, they let Garrett go to church one Sunday and then to the grandparents' home some afterwards while Grouchy was traveling for one of our business ventures or his real job, and I had to be somewhere with Addie and Ainslee where Garrett would have been in danger or a huge distraction. Garrett had taken a liking to the movie "Up" at that time. He loved to watch it over and over and over and.....you get the point. If you have not seen the movie, and I recommend every adult should see it, the three main characters are an older man, a boy and a dog. Well, after church, Garrett piles into the backseat of one of the family's many vehicles right next to Grandpa. Grandpa apparently is fond of Garrett and Garrett likes him as well. But as the car starts down the road Garrett bursts out, "Who is the OLD GUY!?!?!?!?" Everyone got really quiet for an awkward moment until Grandpa answers, "Well, I guess I am!!!" And then a roar of laughter followed. But what was really funny was that not long after that exchange and laugh, the family members in the care realize Garrett was asking the name of the old guy in the movie "Up!" Then that brought about even more laughs!!!!

Leave it to someone in my household (usually me) to say something completely obnoxious, out of place or plainly innocently WEIRD!!!!

And to Grandpa, thanks so much for loving my boy!! I hear he was perched in your lap yesterday at your house while your sweet family cared for him. I appreciate all of the love and friendship each of you give my little man!!!!!!

Godspeed,
Clara-Leigh

Sunday, January 29, 2012

Back In the Saddle Together


It would be a long, long history, so I will be brief. In another life before kids, Grouchy and I had young horses at the same time.....several throughout the years, and we enjoyed working together getting them from the point of scruffy, unruly 2 and year olds to mature, riding horses. We loved it. We enjoyed our time together working these horses as much as we enjoyed the horses. But as is probably obvious to you from our three kiddos and the caboose being Garrett with his needs, the horse starting hobby went WAAAAAY to the wayside. Until now......
Last year Oscar was looking for a young horse prospect to be his "forever horse," and after many drives all over Idaho and Oregon seeing young horses, Grouchy found the ad for the horse you see him on in the photo, Smokey. He was inexpensive, Grouchy's FAVORITE color, dun or buckskin, AND he was HUUUUGE!!! Oh, and he was kind and smart and oh so lovable. And he was three and never ridden. Problem was that when we said to the couple selling that we would buy him, they threw in that they would not sell him without his little 2 year old paint half brother Dusty coming as well, at even a lower price than Smokey. So we agreed and brought home a 2 year old and a 3 year old who were both unridable. Hhhhhhmmmmm. I thought we were nuts and so did my parents!!! Grouchy and the girls and I worked the two geldings, Smokey and Dusty, in the round pen from the ground and even saddled them, but knew we didn't have time to devote to the very important first 30 days of riding/training. We were blessed to be put in touch with a father-son team of reining horse trainers about 6 miles from home, and we sent both of the babies to them for the first 30 rides. We got them home and I was skeptical, to say the least. I have NO BUSINESS on a two or three year old nutcase at this point in my life. The LAST thing we need is for Grouchy or me to be laid up and all broken in some hospital somewhere!!!! But I have been completely surprised. We have ridden the two brothers out of the round pen and down the lane, through fields and down the irrigation ditch roads with absolutely no trouble. Will they catch us off guard? Probably. Will they spook? Certainly! But I am just so happy with the sound minds they both have as saddle horses now!!!! So enjoy the photo above as a glimpse of Grouchy and me being blessed with the gift of returning to our favorite pastime, finally, and cherishing this time more than we ever could know we would!!!!!

Godspeed,
Clara-Leigh

Saturday, January 28, 2012

He Earned It ! ! !

Earlier this week Garrett and I went to the local grocery store together. He pushed the cart and I did all I could to protect my Achilles tendons and all the innocent customers not accustomed to Garrett watching the wheels on the cart spin as she accelerates down the aisles!
We reached the pharmacy area, and while I waited to pay for a few of his prescription refills, he wandered a short ways to a stack of toy trucks with a plastic track/road. He fell in love and asked to buy one. I told him he could not buy it that day, but then it hit me!! "Garrett, it costs eight dollars. If you can be good with Shelby this week and do your "work" (developmental therapy activities she has to have him do weekdays), then you can earn dollars. And when you get eight dollars, then Shelby can bring you back to this store and you can buy the cool truck/road/track set with your VERY OWN EIGHT DOLLARS!!!" Wow, it's not often that sort of parental brilliance hits me, but it is hard to motivate Garrett to get his "work" done, so I figured it was worth a shot!!!! I took a quick photo of Garrett with the toy and him pointing to the price. It was cute. I sent it to Grouchy and my mom and Shelby to let them in on the deal. Shelby gave it a thumbs up so we were good to go!
Garrett stared into space for a while, and I assume he was pondering the deal and trying to process it all, but he walked away without any frustration. We bought our necessary groceries and drugs and left with no problem.

So all week he has been doing good things here and there like going potty when we asked.....#1, that is, playing nicely with other kiddos at the Scottish Playground (McDonalds, and yes, we own stock in the Golden Arches, no joke!!), and buying his sisters the toys earlier in the week. So today after we knew he had earned all eight dollars, Shelby handed him each dollar and said what he did well that earned him the money:

Then Shelby took Garrett to the grocery store to buy his toy! He had his money all tucked inside his jacket pocket per Shelby's thoughtful recommendation. Here he is putting the toy into his very favorite type of shopping cart:

And this is a very proud boy pulling his new toy to the checkout counter!

Can you see the look on his face and tell he is on his tippy-toes handing the toy to the cashier. Now keep in mind that before last summer, him seeing ME putting anything on the counter to pay was a HUGE deal, so Garrett handing anything onto the counter...NO WAY!!! We think maybe he thought the cashiers wouldn't give the things back!! Took MONTHS to get past that, and here he is gladly handing over his prized toy!!!
And here is the real deal after Shelby helped set it up. Honestly, this is the best $8 toy I have ever seen!! Easy to assemble and comes with a flexible track/road and not one but TWO little AA battery-powered monster trucks, a bridge, a tunnel AND an alligator who opens and closes his mouth when the trucks pass a little lever. Oh, and a vermin who comes out of a tree stump when his lever is passed. And yes, I will send you one from our tiny market for $8 plus shipping if you really want one......yes, I am serious!!!
And in the final photo above, Garrett is in serious stimming mode.....that's Autism for focusing and doing strange movements or posture while doing so in Garrett's world. He is beginning to flap his hands and FEROCIOUSLY grinding his teeth as he watches the two trucks speed around the neat little track.

I am so proud of this little dude. And I am so thankful for all of those supporting us through his daily care, medical care and our family's mental care....ha!!!!

Thank you for taking time to duck in and check in on us! Next time you see a little kid buying something in a store, don't take for granted that child's experiences and challenges that may have finally led him to that tiny bit of greatness and independence. Garrett might as well have graduated with his PhD in Astrophysics today as far as I am concerned!!!!

Godspeed,
Clara-Leigh

Friday, January 27, 2012

Me, the Only Person Crying In WalMart Checkout

Garrett and I went to WalMart the other night while Addie and Ainslee were trying a ballet class. I had to get only a few things, so it was quick. And that's not Garrett's favorite way to do WalMart! We get to the checkout area where he is known to have sumo wrestler-size meltdowns, but he stays with me and starts looking at all of those racks of tiny impulsive-buy items by the cash registers. He picks up a toy and asks if he can buy it. I say no. It's one of those clear, plastic globes on a stick with lights that spin inside. It was a miniature one and was about $2.50. He doesn't protest, so I turn away to put the items on the belt, assuming he is returning the toy to its place. When I turn back to him again, he is doing all he can to cradle three of the light toys in his little arms and smiles so big. And I say, "Garrett, now I said 'no.'" But then he completely wows me, melts me and breaks my heart with a concept I had no idea he could manage!!
"But mom I have three! I want them for my girls. I have one for me, one for Addie and one for Ainslee. All three!!!"
I almost fell over!!! I was excited, proud, surprised and so THRILLED at this type of thinking and consideration!!! It was a HUGE mental leap for him to verbalize that AND to think of his two sisters!!!!!!!
So I gave him a huge hug, holding up WalMart 6:00 shopping rush hour and told him to please put the three toys onto the belt so we could pay for them. Bet I was the only mom crying in joy in the checkout line at WalMart!!!
Godspeed,
Clara-Leigh

Thursday, January 26, 2012

Appreciating Those Short, Peaceful Times.

HUGE are these times! Until recently, Garrett would not slow down enough to give anyone a chance to really hug him or snuggle with him. Now it is almost daily I can catch Grouchy in the recliner with Garrett piled on top quietly, peacefully. Granted it is only for an average of 5 seconds, if that, but it is appreciated!!! I hope you can see the joy and peace on Grouchy's face. And you should even be able to see a sense of peace in Garrett's sweet face. I love these two boys!!!! Thank you God for these moments that while brief and tiny give me that thread of hope that keeps me going!

Godspeed,
Clara-Leigh

Wednesday, January 25, 2012

Make-A-Wish Volunteers

Barry, Garrett and Janelle


Meet Garrett's Make-A-Wish volunteers Mr. Barry and Ms. Janelle! Monday evening we met them at McDonalds, or as Oscar calls it, the Scottish Playground. Initially, Janelle asked if we would meet them at a restaurant for a sit-down meeting to complete paperwork and get to know each other, but then I let her know Garrett doesn't do sit-down places so well, so we agreed on the Scottish playground! They had gifts for Garrett and the girls are were so incredibly kind!!! We signed papers and then talked about the possible wishes and dates. We had a Make-A-Wish employee spend time with me over the phone to get ideas. So Walt Disney World in Orlando was the first wish. And then dates. We have to be cautious not to try the hot, summer months as Addie and Garrett both have trouble with the heat. Then we talked about October, September or maybe March. Janelle and Barry wanted to shoot for March, so we left it at that. Then today we got a call from Janelle saying March would not work, but that they want to try for October. While we were excited thinking it might happen so quickly, I know that we will have fun preparing for our trip and helping Garrett better understand what is going on. We want him to know some things about Disney World and let him watch some videos and such. Maybe by October we will also have a bit more maturity under his belt. That would help with the travel part at least!!


We have not left the state with Make-A-Wish yet, and already I am humbled and thrilled and overwhelmed with people's kindness and generosity. It's just amazing.


And of course we will pray for continued good health as we wait for our trip!!


And speaking of good health, we are on the schedule to see Dr. Saneto in Seattle next month. I cannot wait to see him in person again and have my little Garrett with a closer doctor whom I respect so very much. I am interested in gaining his perspective on Garrett and his care and future. I met Dr. Saneto in Chicago last summer at the United Mitochondrial Disease Foundation's symposium, but never got to talk to him about Garrett's case. We did blood work for him here a couple of weeks ago, and all we have left is the office visit and possibly an MRI since Garrett has not had one since he was 16 months old. We will fly over on a Sunday and then return Monday night or Tuesday, depending on the MRI scheduling and recovery as he will have to be sedated for that.


Reading the Charles Stanley Life Principles Daily Bible, and my eyes are crossing and I haven't picked it up yet tonight, so I best sign off and get to "work!"


Godspeed,

Clara-Leigh

Sunday, January 22, 2012

Grouchy's First Blog Contribution!!!! Great Read!!!!


For the first time, I have the honor of a guest contributor on the blog! The subject of many photos and great stories to date, here is the man, the legend, my best friend, my beloved husband, Grouchy, bringing a daddy's perspective to parenting and loving our sweet Garrett. I know you will enjoy this insight, and by the way, he is an INCREDIBLE writer!!! And that's how he made me fall for him....through 6 months of letter-writing before we ever met in person. I will blog that another day when I have LOTS of time. Enjoy!!! Godspeed, CL


Garrett’s Done it Again! Or, ‘Where’s Garrett?’

No, he hasn’t pooped down his leg, broken another expensive TV, Wii, or other electronic device, or poured his raisin bran out on the table. Well, actually he has done all of that and probably will again, but it’s just not what I’m talking about. He’s stolen another heart. I’m Garrett’s Dad to another person I barely know because she met Garrett at a little gathering and he wrapped her around his finger.

‘Where’s Garrett?’ is a question we ask each other multiple times every day. It’s a combination question of who’s watching him, what valuable items are in danger, is he clean/dry, is he safe… and so on. But to others, it’s a genuine curiosity and hint of ‘I wish Garrett were with you’ when we see them without Garrett.

Garrett has a string of beautiful teenage girls who call him on 5-6 days/week. One of them gets him off the bus at noon and plays with him until 3:30 when another one intercepts him and plays with him until late evening, often times bathing him, feeding him and putting him in bed. Garrett’s 6 and he has more - and more concentrated - female attention than I’ve ever had… And everyone knows my lovely wife gives me more than I deserve, so that is not a complaint. Even though these charming young ladies are compensated for their time, their dedication is a tribute to Garrett, not the almighty dollar.

Garrett has his own horse trainer. Oh, he doesn’t have his own horse yet. But he has a horse trainer that is more interested in him than the horses I paid him to train. I met George through a mutual friend. A grandpa who is easing out of the training side of horses, but still making his living shoeing the critters, George is a reining horse champion who works with his son, Mike, training and shoeing. They’re the kind of pure authentic country neighbors we have that both talk bad about the other, but with a smile so wide you know it’s just their way of loving each other. So when I went to see how our horses were doing that he was training, I tried to pick an evening that they were riding and that I had Ainslee with me, but not Garrett and that wasn’t Gymnastics, AWANA, Dance or piano… so I ended up with Garrett and Ainslee. As we all three approached the round pen where Mike was riding one of our young ‘uns and George was assisting on the ground, I was busy directing Garrett and preparing to apologize for whatever he might unexpectedly do or wherever he might uninvitingly go. But after a couple of minutes of one eye on the horse and one eye on Garrett, George exited the round pen and left me to watch the horse being worked, assuring me that Garrett couldn’t hurt anything around his place. ‘Oh, you don’t know Garrett,’ I thought, as George disappeared, presumably to take care of some of the other mounts around his barn. Next thing I know Garrett is in the middle of the arena with a somewhat broken tricycle in tow and George closely behind. ‘I’ll get him, George,’ I holler, expecting George to be miffed at the interruption of his cold and windy evening routine. ‘You just stay with Mike,’ George hollered back. ‘I’ve got Garrett and we’re just fine.’ ‘We’re just fine,’ I thought. George – a nice guy for sure, but someone who doesn’t even admit to liking people and who has thousands more hours of saddle time than social time – following Garrett like he was his own grandson and forgetting about his chores or anything else. Now, every time I see George – or Mike for that matter – the first question they ask is, ‘Where’s Garrett?’ George stopped by yesterday to check on one of the horses he had trained who is a little lame. He did a quick hoof check, then it was back to the backyard to watch Garrett play. Come to think of it, the only time I’ve seen George laugh is when he’s talking bad about Mike, or watching Garrett.

Ken’s shop is just a couple of miles from our house. Ken knows every rancher, farmer, hunter and fisher in the valley, and on any given day, if you stop in for more than five minutes, you’re sure to meet one of them who’s also stopping in for five minutes. Now, five minutes at Ken’s shop is not five minutes on the clock. Five minutes is a figurative term used to describe the amount of time you actually lose by stopping in, but to be sure, it’s not ever less than 15 – and that’s if you’re in a hurry. It usually involves a cup of coffee if he’s open, or a cup of something better if he’s closing. Ken enjoys his shop being the gathering place to discuss the latest roundup or harvest data. But Ken’s shop is not ‘kid-friendly.’ It’s got big tables of canvas and big machines around to sew it all together, or monogram it, or cut it. But when I stop in with Garrett, Ken is more than willing to donate his flat dolly to the cause of Garrett of pushing it around his shop making train noises, or bus noises, or just noises that he thinks coincide with whatever maneuver he’s executing. And, while notably disturbed by the activities of the kids of some others who stop by and relinquish control of their little ones to the open space of Ken’s shop, Ken is very interested and even engrossed in little JG and his questions about the machines and material that lie around in seemingly random fashion. Invariably, after being offered a cup of coffee, the next question I get when I stop by without Garrett is, ‘Where’s Garrett?’

Heidi is the friend of a friend. A sincere young lady we met at a Dutch Oven cookout at someone’s house. In fact, we didn’t even know the hosts, so we tried to decline the invite based on that fact coupled with the fact that we had no sitter for the evening. After being assured we and our kids were welcome, we found our way to a nice contemporary house in a nice neighborhood. The primary gathering was around the fire in the spacious backyard. No other children were present, and, as usual, Clara-Leigh and I ended up on separate watches, with her manning the inside of the house where people only transited to refresh drinks or raid her chips and dip, and me by the fire or in the area looking out for Garrett when he came outside. Later in the evening, worn out from entertaining Garrett inside, CL made it outside to the fire with JG. And, in spite of the absence of any other children, our two girls had done their usual integration with Addie talking to one or two of the other adults, Ainslee entertaining any and all who would pay attention and Garrett… Garrett was with Heidi. Or, should I say, Heidi was Garrett. Unbeknownst to either of us, Garrett was wrapping another beautiful young lady around his little finger. We would find out later at another similar gathering of mostly the same people when Heidi asked us about Garrett and then went on to explain the connection she had with him, the amazement she had of his mind and his wonderings and his wanderings. She wants to keep Garrett. She wants us to give us an evening off, but really what she wants is an evening on. An evening where she can escape this silly world and all its convention and go with Garrett to that mystical place where he lives in wonder and amazement at the simplest things that the rest of us take for granted or think we understand or are annoyed by.

So, where’s Garrett? Well, on any given day, Garrett can go to the fair – which is our driveway and a big plastic roller coaster that Santa brought; or he can be on stage – which is our living room floor coupled with an iTouch, DSI, play guitar or any other musical instrument to which Garrett can march, gyrate, or do the chicken dance in perfect rhythm; or he can ‘go really fast’ on Dad’s tractor, which is just me and my old 1980 model IH 1086 running it for the sake of running it, but having more fun than it should be because Garrett is propped up on the ledge behind the seat screaming with excitement as go down the ‘roller coaster’ of our driveway and ‘speed’ down the road at 18 Mph to Mr. Bob’s just to turn around do it again; or he can drive his school bus - an old tricycle from his therapist office that they had to get rid of because it no longer met safety standards – with one of his lady friends in tow holding on to a rope and sitting in an easy roller designed for someone 10 years their junior smiling and laughing as they glide through Garrett’s world with him. Where’s Garrett? He’s in a beautiful, magical, mystical place without clocks or schedules or assumptions or convention and anyone who gets to join him gets a glimpse of a better place as well. Yes, my amazing wife and I can always use and appreciate an evening off – an evening to spend with each other or our two little angels who live in the same world as we. But, maybe what we need more often is an evening on – an evening without the rigors and stresses of the clock, the convention, the coldness of our ‘normal’ world.

As for me, I think I’ll go to the fair for a little while this afternoon.