tag:blogger.com,1999:blog-5544258568060594716.post5401918284420990136..comments2023-06-28T04:48:51.379-06:00Comments on Mito Life Window: Garrett....Really, 6 Already???Clara-Leighhttp://www.blogger.com/profile/12698696005034922293noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-5544258568060594716.post-83181109066089462492011-07-12T02:18:12.709-06:002011-07-12T02:18:12.709-06:00Hey Clara-Leigh! OK, its been awhile since Ive rae...Hey Clara-Leigh! OK, its been awhile since Ive raelly sat down and spent hours keeping up with all our special moms out there! WOW, 6 yrs old, can hardly believe it, but Jack is 8 now and I cant believe that either! He still looks about 6 to me anyways. <br /><br />Was waiting for more of an update with the Chicago Symposium (from anyone!)...I so wish I could of cornered a Mito specialist about sleep stuff, and mostly about Hypoventilation and using oxygen for our kiddos. I really want to give it a try for Jack due to his sleepiness and daily fatigue thats been going on for waaayyy too long. The Bipap isnt working out, a month now and he hyperventilates everytime I just try to put it on his face. So I just sent an email off to his Pulmo, pretty much begging him to let us try it. Of course we'll have to keep an eye on his CO2 retention and pray that using the O2 wont raise the numbers any further. Dr. Russ S (Jacks Seattle Mito Dr, Im sure you saw him in Chicago) Isnt pro oxygen like other Mito Specialist are. Dr. K is and often recommends it for her patients when they dip below 95. Jack can dip into the 80's at night but we have yet caught it during a sleep study (naturally!) I want to try something though since another school year is around the corner and I cant see him missing so many days again. Its either that or nothing and its the nothing that worries me. His CO2 labs/breathing is worsening.<br /><br />Anyway...Sorry to see you lost your sweet old dog :( thats never easy. I know nothing about horses but I suppose theyre no different than adopting a dog from a shelter--you never know what youre going to get! <br /><br />WELL BIG HUGS to all your kiddos, will be looking for an update on Addies stuff soon--Enjoy whats left of your summer!<br />Heidi & Jack.Heidihttps://www.blogger.com/profile/02241152139861621622noreply@blogger.com